Read A Life Everlasting Online
Authors: Sarah Gray
UW Organ and Tissue Donation
450 Science Drive, Suite 220
Madison, WI 53711
Phone: (608) 262-3248
Fax: (608) 262-9099
www.uwhealth.org/organ-donation/organ-and-tissue-donation/10868
MINNESOTA
LifeSource Organ and Tissue Donation
2225 West River Road North Minneapolis, MN 55411
Phone: (612) 800-6100
Fax: (612) 800-6331
www.life-source.org
UW Organ and Tissue Donation
450 Science Drive, Suite 220
Madison, WI 53711
Phone: (608) 262-3248
Fax: (608) 262-9099
www.uwhealth.org/organ-donation/organ-and-tissue-donation/10868
MISSISSIPPI
Mississippi Organ Recovery Agency
4400 Lakeland Drive
Flowood, MS 39232
Phone: (601) 933-1000
Fax: (601) 933-1006
www.msora.org
Mid-South Transplant Foundation, Inc.
8001 Centerview Parkway, Suite 302
Memphis, TN 38018
Phone: (901) 328-4438
Fax: (901) 328-4462
www.midsouthtransplant.org
MISSOURI
Midwest Transplant Network
1900 W 47th Place, Suite 400
Westwood, KS 66205
Phone: (913) 262-1668
Fax: (913) 262-5130
www.mwtn.org
Mid-America Transplant
1110 Highlands Plaza Drive East
St. Louis, MO 63110
Phone: (314) 735-8200
Fax: (314) 991-2805
www.midamericatransplant.org
MONTANA
LifeCenter Northwest
3650 131st Ave SE, Suite 200
Bellevue, WA 98006
Phone: (425) 201-6563
Fax: (425) 688-7641
www.lcnw.org
NEBRASKA
Nebraska Organ Recovery System
8502 West Center Road Omaha, NE 68124
Phone: (402) 733-1800
Fax: (402) 733-9312
www.nedonation.org
Iowa Donor Network
550 Madison Avenue
North Liberty, IA 52317
Phone: (319) 665-3787
Fax: (319) 665-3788
www.iowadonornetwork.org
NEVADA
Nevada Donor Network
2061 East Sahara Avenue
Las Vegas, NV 89104
Phone: (702) 796-9600
Fax: (702) 796-4225
www.nvdonor.org
Intermountain Donor Services
230 South 500 East, Suite 290
Salt Lake City, UT 84102
Phone: (801) 521-1755
Fax: (801) 364-8815
www.idslife.org
Donor Network West
12667 Alcosta Boulevard #500
San Ramon, CA 94583
Phone: (888) 570-9400
Fax: (510) 444-8501
www.donornetworkwest.org
NEW HAMPSHIRE
New England Organ Bank
60 First Avenue
Waltham, MA 02451
Phone: (617) 244-8000
Fax: (617) 244-8755
www.neob.org
NEW JERSEY
Gift of Life Donor Program
401 North 3rd Street
Philadelphia, PA 19123
Phone: (215) 557-8090
Fax: (215) 557-9359
www.donors1.org
NJ Sharing Network
691 Central Avenue
New Providence, NJ 07974
Phone: (908) 516-5400
Fax: (908) 516-5501
www.njsharingnetwork.org
NEW MEXICO
New Mexico Donor Services
1609 University Boulevard NE
Albuquerque, NM 87102
Phone: (505) 843-7672
Fax: (505) 343-1828
www.donatelifenm.org
NEW YORK
Center for Donation & Transplant
Albany Medical Center 218 Great Oaks Boulevard Albany, NY 12203
Phone: (518) 262-5606
Fax: (518) 262-5427
www.cdtny.org
Unyts
110 Broadway
Buffalo, NY 14203
Phone: (716) 853-6667
Fax: (716) 853-6674
www.unyts.org
LiveOnNY
460 West 34th Street, 15th Floor
New York, NY 10001
Phone: (646) 291-4444
Fax: (646) 291-4600
www.liveonny.org
Finger Lakes Donor Recovery Network
Corporate Woods Brighton, Building 30, Suite 220
Rochester, NY 14623
Phone: (585) 272-4930
Fax: (585) 272-4956
www.donorrecovery.org
Center for Organ Recovery & Education
RIDC Park
204 Sigma Drive
Pittsburgh, PA 15238
Phone: (412) 963-3550
Fax: (412) 963-3564
www.core.org
NORTH CAROLINA
Carolina Donor Services
909 East Arlington Boulevard
Greenville, NC 27858
Phone: (252) 757-0090
Fax: (252) 757-0708
www.carolinadonorservices.org
LifeShare of the Carolinas
5000 D Airport Center Parkway
Charlotte, NC 28208
Phone: (704) 512-3303
Fax: (704) 512-3056
www.lifesharecarolinas.org
LifeNet Health
1864 Concert Drive
Virginia Beach, VA 23453
Phone: (800) 847-7831
Fax: (757) 227-4690
www.lifenethealth.org
NORTH DAKOTA
LifeSource Organ and Tissue Donation
2225 West River Road North
Minneapolis, MN 55411
Phone: (612) 800-6100
Fax: (612) 800-6331
www.life-source.org
OHIO
LifeCenter Organ Donor Network
615 Elsinore Place, Suite 400
Cincinnati, OH 45202
Phone: (513) 558-5000
Fax: (513) 558-8843
www.lifepassiton.org
Life Connection of Ohio
3661 Briarfield Boulevard #105
Maumee, OH 43537â1694
Phone: (419) 893-4891
Fax: (419) 893-1827
www.lifeconnectionofohio.org
Lifebanc
4775 Richmond Road
Cleveland, OH 44128-5919
Phone: (216) 752-5433
Fax: (216) 751-4204
www.lifebanc.org
Lifeline of Ohio
770 Kinnear Road, Suite 200
Columbus, OH 43212
Phone: (614) 291-5667
Fax: (614) 291-0660
www.lifelineofohio.org
Kentucky Organ Donor Affiliates
10160 Linn Station Road
Louisville, KY 40223
Phone: (502) 581-9511
Fax: (502) 589-5157
www.kyorgandonor.org
OKLAHOMA
LifeShare Transplant Donor Services of Oklahoma
4705 NW Expressway
Oklahoma City, OK 73132
Phone: (405) 840-5551
Fax: (405) 840-9748
www.lifeshareoklahoma.org
OREGON
Pacific Northwest Transplant Bank
2611 SW 3rd Avenue, Suite 320
Portland, OR 97201
Phone: (503) 494-5560
Fax: (503) 494-4725
www.pntb.org
PENNSYLVANIA
Gift of Life Donor Program
401 North 3rd Street
Philadelphia, PA 19123
Phone: (215) 557-8090
Fax: (215) 557-9359
www.donors1.org
Center for Organ Recovery & Education
RIDC Park, 204 Sigma Drive
Pittsburgh, PA 15238
Phone: (412) 963-3550
Fax: (412) 963-3564
www.core.org
LiveOnNY
460 West 34th Street, 15th Floor
New York, NY 10001
Phone: (646) 291-4444
Fax: (646) 291-4600
www.liveonny.org
PUERTO RICO
LifeLink of Puerto Rico
Daimler-Chrysler Building, Metro Office Park
Suite 100, Calle 1, #1
Guaynabo, PR 00968-1705
Phone: (787) 277-0300
Fax: (787) 277-0876
www.lifelinkfoundation.org
RHODE ISLAND
New England Organ Bank
60 First Avenue
Waltham, MA 02451
Phone: (617) 244-8000
Fax: (617) 244-8755
www.neob.org
SOUTH CAROLINA
LifePoint
3950 Faber Place Drive
Charleston, SC 29405
Phone: (843) 763â7755
Fax: (843) 763â6393
www.lifepoint-sc.org
LifeLink of Georgia
2875 Northwoods Parkway
Norcross, GA 30071
(770) 225-5465
(800) 544-6667
www.lifelinkfoundation.org
SOUTH DAKOTA
LifeSource Organ and Tissue Donation
2225 West River Road North Minneapolis, MN 55411
Phone: (612) 800-6100
Fax: (612) 800-63311
www.life-source.org
TENNESSEE
Tennessee Donor Services
1600 Hayes Street, Suite 300
Nashville, TN 37203
Phone: (865) 588-1031
Fax: (865) 588-5903
tds.dcids.org
Mid-South Transplant Foundation, Inc.
8001 Centerview Parkway, Suite 302
Memphis, TN 38018
Phone: (901) 328-4438
Fax: (901) 328-4462
www.midsouthtransplant.org
TEXAS
LifeGift
2510 Westridge Street
Houston, TX 77054
Phone: (713) 523-4438
Fax: (713) 737-8110
www.lifegift.org
Southwest Transplant Alliance
5489 Blair Road
Dallas, TX 75231
Phone: (214) 522-0255
Fax: (214) 522-0430
www.organ.org
Texas Organ Sharing Alliance
8122 Datapoint Drive, Suite 200
San Antonio, TX 78229
Phone: (210) 614-7030
Fax: (210) 614-2129
www.txorgansharing.org
UTAH
Intermountain Donor Services
230 South 500 East, Suite 290
Salt Lake City, UT 84102
Phone: (801) 521-1755
Fax: (801) 364-8815
www.idslife.org
VERMONT
Center for Donation & Transplant
Albany Medical Center
218 Great Oaks Boulevard
Albany, NY 12203
Phone: (518) 262-5606
Fax: (518) 262-5427
www.cdtny.org
New England Organ Bank
60 First Avenue
Waltham, MA 02451
Phone: (617) 244-8000
Fax: (617) 244-8755
www.neob.org
VIRGINIA
LifeNet Health
1864 Concert Drive
Virginia Beach, VA 23453
Phone: (800) 847-7831
Fax: (757) 227-4690
www.lifenethealth.org
Washington Regional Transplant Community
7619 Little River Turnpike, Suite 900
Annandale, VA 22002
Phone: (703) 641-0100
Fax: (703) 658-0711
www.beadonor.org
Tennessee Donor Services
1600 Hayes Street, Suite 300
Nashville, TN 37203
Phone: (865) 588-1031
Fax: (865) 588-5903
tds.dcids.org
Carolina Donor Services
909 East Arlington Boulevard
Greenville, NC 27858
Phone: (252) 757-0090
Fax: (252) 757-0708
www.carolinadonorservices.org
WASHINGTON
LifeCenter Northwest
3650 131st Avenue SE, Suite 200
Bellevue, WA 98006
Phone: (425) 201-6563
Fax: (425) 688-7641
www.lcnw.org
Pacific Northwest Transplant Bank
2611 SW 3rd Avenue, Suite 320
Portland, OR 97201
Phone: (503) 494-5560
Fax: (503) 494-4725
www.pntb.org
WEST VIRGINIA
Center for Organ Recovery & Education
RIDC Park, 204 Sigma Drive
Pittsburgh, PA 15238
Phone: (412) 963-3550
Fax: (412) 963-3564
www.core.org
Kentucky Organ Donor Affiliates
10160 Linn Station Road
Louisville, KY 40223
Phone: (502) 581-9511
Fax: (502) 589-5157
www.kyorgandonor.org
LifeLine of Ohio
770 Kinnear Road, Suite 200
Columbus, OH 43212
Phone: (614) 291-5667
Fax: (614) 291-0660
www.lifelineofohio.org
LifeNet Health
1864 Concert Drive
Virginia Beach, VA 23453
Phone: (800) 847-7831
Fax: (757) 227-4690
www.lifenethealth.org
WISCONSIN
UW Organ and Tissue Donation
450 Science Drive, Suite 220
Madison, WI 53711
Phone: (608) 262-3248
Fax: (608) 262-9099
www.uwhealth.org/organ-donation/organ-and-tissue-donation/10868
Wisconsin Donor Network
9000 West Chester Street, Suite 250
Milwaukee, WI 53214
Phone: (414) 937-6999
Fax: (414) 937-6998
www.bcw.edu/bcw/Organ-Tissue-Marrow/index.htm
LifeSource Organ and Tissue Donation
2225 West River Road North Minneapolis, MN 55411
Phone: (612) 800-6100
Fax: (612) 800-6331
www.life-source.org
WYOMING
Donor Alliance
720 South Colorado Boulevard, Suite 800-N Denver, CO 80246
Phone: (303) 329-4747
Fax: (303) 321-1183
www.donoralliance.org
Intermountain Donor Services
230 South 500 East, Suite 290
Salt Lake City, UT 84102
Phone: (801) 521-1755
Fax: (801) 364-8815
www.idslife.org
Outside the USA
V
IRGIN
I
SLANDS
LifeLink of Puerto Rico
Daimler-Chrysler Building, Metro Office Park
Suite 100, Calle 1, #1
Guaynabo, PR 00968-1705
Phone: (787) 277-0300
Fax: (787) 277-0876
www.lifelinkfoundation.org
My sincere gratitude goes out to the following:
Those who brought this book to life through their hard work and passion: Nicole James, Rachel Sussman, and Terra Chalberg of Chalberg & Sussman; Mark James; Elizabeth Stein; Luke Dempsey, Suzanne Wickham, Kim Dayman, and Adrian Morgan at HarperOne, and Mary Ann Petyak at HarperCollins; Dan Gerstein; and Professor Joseph Graf.
The medical staff who handled our challenging situation with professionalism, kindness, and grace under pressure: John Maddox; Harvey Stern; Ahmet Baschat; Christopher Harman; Alfred Khoury; Samer Cheaib; Stephen Kennedy; Kelly Gallo; Philip Brooks; Brandy Celnicker; Becky Taylor; the team from Capital Caring, especially Cindi Carney; and Metropolitan Funeral Service, especially Karen Brendle.
The entire team at WRTC, especially Becky Hill, Lisa A. Colaianni, Maureen M. Balderston, Immanuel Rasool, Karen Haase, Debra Goldstein, Lori Brigham, Carlos Fernandez-Bueno, Elizabeth Turner, Rudy Murray, Dave Destefano, Kimberly Woodard, Connie Marroquin, and Matthew Niles.
The entire team at Old Dominion Eye Foundation, especially Bill Proctor, Christina Jenkins, Jennifer Payton, and David Taylor.
The entire team at NDRI, especially Bill Leinweber, Jeffrey Thomas, Mike Salvatore, Bernadette Mestichelli, and Kerri Harvey.
The entire team at Massachusetts Eye and Ear/Schepens Eye Research Institute, especially Elizabeth Mason, Carolyn Bellefeuille, James Zieske, Andrius Kazlauskas, Patricia D'Amore, John Fernandez, Mary Leach, and Jennifer Street.
The entire team at Duke Center for Human Genetics, especially
Heidi Cope, Simon Gregory, Allison Ashley-Koch, Deidre Krupp, and Karen Soldano.
The entire team at Cytonet, especially Mark Johnston, Sonya Meheux, and Kyle Kinsey.
The entire team at the University of Pennsylvania Genetics Lab, especially Arupa Ganguly, Karen Kreeger, Jennifer Richards-Yutz, and Jessica Ebrahimzadeh.
To those who served as invaluable sources of information, facts, ideas, and edits: Misha Angrist, the Conkel family, the McGinley and Cates families, Scotty Bolleter, Sue Scott, Christian Hinrichs, Mara ans Sharon Cray, Chris Mason, Albert Wu, Sarah Grays, Sam Sternberg, Laura Siminoff, Rebecca Cummings-Suppi, Carol Weil, Keith Meatto, Jeremy Wrubel, Veronica Fernandez, Alex Ampadu, Jackie Lue Raia, Alex Solomon, James Selby Jr., Veena Chowdhan and Abbas Syed, Anthony DiMaria, Amanda Bisnauth-Thomas, Matt Might, Sukru Emre, Michael Vitez, Ronda Horstman, Gregory Grossman, Hilary Czarda, Gina Dunne-Smith, and Jerry Vannetta.
Influences, contributors to the story, and help along the way: Houeida Saad, Monika and Anouk Jaquier and the entire Anencephaly.info Facebook Group community, Allison and Faith Andrews, Cyndi and Morgan Barnett, Tania Ponomarenko, Adam Foster, Jay and Clarice Gibson, Ozan Williams, Azian Zain, Anna Whiston-Donaldson, Sophia Smith, Emily Berman, Tony Zwerdling and Ginger Vowell, Deb Weisshaar, Min Tak, Jane Jamieson, and Caitriona Palmer.
The entire AATB staff, especially Frank Wilton, Scott Brubaker, Jenny Chatman, and Veronica Escalona.
To those who donated the blood and blood products that I received during childbirth (Inova Blood Bank Donor IDs #: W0B9810002415, W089810002346, W089810602156, W089810201081, W083210000091, W089810602001, and W089809453744), thank you for donating the blood that saved my life. I hope to meet you all and thank you in person.
My amazing family and friends who endured it all with us, especially Suzanne Rydel and the entire Hughes family, Mark and Jennifer Walpole, Ethan Walpole, James and Cathy Walpole and the entire
Walpole family, Bob Rydel
2
and family, Pauline and Eddie Gray and family, Julia and Garry Mountford, Susan Pollack, and Melanie and Chris Parks.
My children, Callum and Jocelyn. I hope you can always feel me hugging you.
And the other person who experienced this with me, my husband, Ross. I'm so glad to have you by my side.