Killing Us Softly (32 page)

180
Burzynski Research Institute: Ibid.

181
Blackstein and Bergasel and “hoodwinked”: Barrett,
Consumer Health
, 373; M. E. Blackstein and D. E. Bergsagel.
Report to the Ontario Ministry of Health on the Treatment of Cancer Patients with Antineoplastons and the Burzynski Clinic in Houston, Texas
. Undated, circa 1983.

181
Blackstein, Bergasel, and additional patients: “Pharmacologic and Biological Treatments,” in
Unconventional Cancer Treatments
,
Quackwatch
, www.quackwatch.org/01QuackeryRelatedTopics/OTA/ota05.html.

182
1985 review: Ibid.

182
Sally Jessy Raphael and
Inside Edition
: Barrett,
Consumer Health
, 373.

182
Office of Technology Assessment: American Cancer Society, “Anti-Neoplaston Therapy,” www.cancer.org/Treatment/TreatmentsandSideEffects/ ComplementaryandAlternativeMedicine/PharmacologicalandBiologicalTreatment/antineoplaston-therapy.

183
Jacobs regarding clowns: P. Goldberg, “The Antineoplaston Anomaly: How a Drug was Used for Decades in Thousands of Patients with No Safety, Efficacy Data,”
The Cancer Letter
, September 25, 1998.

183
National Cancer Institute trial of antineoplastons: J. Buckner, M. Malkin, E. Reed, et al., “Phase II Study of Antineoplastons A10 (NSC 648539)
and AS2-1 (NSC 620261) in Patients with Recurrent Glioma,”
Mayo Clinic Proceedings
74 (1999): 137–45.

183
Burzynski angry at NCI study: G. Phillips, “Interview with Dr. Burzynski,” December 5, 2003, www.cancerinform.org/aburzinterview.html.

184
Saul Green reviews antineoplastons: S. Green, “Antineoplastons: An Unproved Cancer Therapy,”
Journal of the American Medical Association
267 (1992): 2924–28.

184
Review of Burzynski by cancer specialists: Goldberg, “The Antineoplaston Anomaly.”

185
Congressional hearing:
Burzynski: The Movie
.

185
Cancer activists angry at Burzynski: Goldberg, “The Antineoplaston Anomaly.”

186
Sigma Tau Pharmaceuticals drops antineoplaston research: Green, “Antineoplastons: An Unproved Cancer Therapy.”

186
Burzynski claims conspiracy among oncologists: Phillips, “Interview with Dr. Burzynski.”

186
Goldberg and Friedman regarding cancer drug testing: Goldberg, “The Antineoplaston Anomaly.”

187
PLX4032: A. Harmon, “A Roller Coaster Chase for Cure,”
New York Times
, February 21, 2010; A. Harmon, “New Drugs Stir Debate on Rules of Clinical Trials,”
New York Times
, September 18, 2010; A. Harmon, “Drug to Fight Melanoma Prolonged Life in Trial,”
New York Times
, January 19, 2011; R. Schwartz, “
The Emperor of All Maladies
—The Beginning of the Beginning,”
New England Journal of Medicine
365 (2011): 2353–55.

188
Adamson regarding Burzynski: Peter Adamson, interviewed by the author, September 19, 2011.

188
Burzynski as caring man: C. Malisow, “Cancer Doctor Stanislaw Burzynski Sees Himself as a Crusading Researcher, Not a Quack,”
Houston Post
, January 1, 2009.

189
Adamson regarding false hope: Peter Adamson, interviewed by the author, September 19, 2011.

189
Maris regarding false hope: John Maris, interviewed by the author, September 28, 2011.

190
Jeanine Graf regarding Burzynski's therapies: Jeanine Graf, interviewed by the author, March 1, 2012.

191
Science blogger regarding false hope: Andy Lewis, “The False Hope of the Burzynski Clinic,” November 21, 2011, www.quackometer.net/blog/2011/11/the-false-hope-of-the-burzynski-clinic.html.

191
Billie Bainbridge dies: “Billie Bainbridge Dies After Battle with Brain Stem Cancer,” BBC News, June 5, 2012, www.bbc.co.uk/news/uk-england-devon-18331017.

192
Burzynski's anti-aging medicines: www.aminocare.com.

192
Somers's book: S. Somers,
Knockout: Interviews with Doctors Who Are Curing Cancer and How to Prevent Getting It in the First Place
(New York: Crown Publishing Group, 2009).

192
Mukherjee's book: S. Mukherjee,
The Emperor of All Maladies: A Biography of Cancer
(New York: Scribner, 2010).

C
HAPTER 10:
M
AGIC
P
OTIONS IN THE
T
WENTY-
F
IRST
C
ENTURY

198
“One for the Angels”:
The Twilight Zone,
episode 2, “One for the Angels” (Los Angeles: Cayuga Productions, October 9, 1959).

200
Origins of
quack
: Barrett and London,
Consumer Health
, 36.

201
Patent medicines: Anonymous,
Nostrums and Quackery
; Cramp,
Nostrums and Quackery
.

201
Kickapoo Joy Juice: McNamara,
Step Right Up
, xiv.

201
Celebrity supporters: McCoy,
Quack
, 95, 201.

202
Buttar's background: Buttar,
9 Steps
, 329–31.

203
Buttar regarding man-made harms: Ibid., 81.

203
Risks of environmental toxins are overstated: G. Kabat,
Hyping Health Risks: Environmental Hazards in Daily Life and the Science of Epidemiology
(New York: Columbia University Press, 2011).

203
Chelation studies fail to show effect: E. Ernst, “Chelation Therapy for Peripheral Arterial Occlusive Disease: A Systematic Review,”
Circulation
96 (1997): 1031–33.

204
Garcia testimony:
In the Matter of Rashid Ali Buttar, D. O., Before the North Carolina Medical Board
, April 24, 2008 (testimony by Jane Garcia).

204
Buttar on son's birth: Rashid A. Buttar, D. O.,
Know Your Options: Autism: The Misdiagnosis of Our Future Generations
, DVD (Coral Gables, Fla.: Dolphin Entertainment, 2006).

204
Buttar regarding mission from God: Buttar,
9 Steps
, 264.

205
Buttar on struggle with God: Ibid., 264–65.

205
Buttar on son's recovery: Ibid.

205
Jennings's symptoms: J. Avila and D. Cohen, “Medical Mystery or Hoax:
Did Cheerleader Fake a Muscle Disorder?” ABC News, July 23, 2010; “Desiree Jennings,”
RationalWiki
, http://rationalwiki.org/wiki/Desiree_Jennings.

206
Jennings and Coldplay: Ibid.

206
Jennings and British accent: “Flu Shot Woman,”
Inside Edition
, http://www.insideedition.com/headlines/159-flu-shot-woman.

206
Jennings's diagnostic tests: “The Flu, a Shot to the System,” www.louduntimes.com/index.php/archive/article/Column_The_flu_a_shot_to_the_system.

206
Jennings and dystonia: Ibid.

206
Inside Edition
story: “Woman Says Flu Shot Triggered Rare Neurological Disorder,” www.wusa9.com/news/local/story.aspx?storyid=92345&catid=158.

206
Jenny McCarthy directs Jennings to Buttar: “Desiree Jennings Update: Road to Recovery,”
Planet Thrive
, http://planetthrive.com/2009/11/desiree-jennings-update-road-to-recovery.

207
Buttar diagnoses Jennings with mercury toxicity: C. Coffey, “Woman Disabled by Flu Shot Reaction,” www.myfoxdc.com/dpp/health/101309_woman_disabled_by_flu_shot_reaction_dystonia.

207
Jennings on
20/20
: Avila and Cohen, “Medical Mystery or Hoax.”

207
Hopkins neurologist diagnoses psychogenic disorder: S. Novella, “Desiree Jennings: The Plot Thickens,”
Neurologica
blog, http://theness.com/neurologicablog/?p=1558; Orac, “Has Desiree Jennings VAERS Report Been Found?”
ScienceBlogs
, http://scienceblogs.com/insolence/2009/11/05/has-desiree-jennings-vaers-report-been-f.

207
Novella regarding Jennings: S. Novella, “Desiree Jennings on
20/20
,”
Neurologica
blog, http://theness.com/neurologicablog/?p=2150.

207
University of Maryland uses Jennings's tape to train residents: “Desiree Jennings,”
RationalWiki
; http://www.foxnews.com/search-results/m/26952743/flu-shot-fears.htm.

207
Inside Edition
follow-up story: “Flu Shot Woman,”
Inside Edition
.

208
Novella regarding Jennings: www.theness.com/neurologicablog/?p=1195.

208
Jennings and China: Avila and Cohen, “Medical Mystery or Hoax.”

208
Problems with provoked metals excretion testing: S. Barrett, “How the ‘Urine Toxic Metals' Test Is Used to Defraud Patients,”
QuackWatch,
www.quackwatch.org/01QuackeryRelatedTopics/Tests/urine_toxic.html (italics mine).

208
Buttar testifies at congressional hearing:
Autism Spectrum Disorders: An Update of Federal Government Initiatives and Revolutionary New Treatments of
Neurodevelopmental Diseases,
Before the Subcommittee on Human Rights & Wellness Government Reform Committee
, May 6, 2004 (testimony by Rashid A. Buttar).

209
Heavy-metals test on autistic and normal children: S. E. Soden et al., “24-Hour Provoked Urine Excretion Test for Heavy Metals in Children with Autism and Typically Developing Children: A Pilot Study,”
Clinical Toxicology
45 (2007): 476–81.

209
Novella regarding Jennings: S. Novella, “Well That Didn't Take Long—Another Dystonia Case Follow Up,”
Neurologica
blog, www.theness.com/neurologicablog/?p=1195.

209
Buttar regarding testing of TD-DMPS: Estherar, “The Allure of Biomedical Treaments [
sic
] for Autism,” Mainstream Parenting Resources, http://mainstreamparenting.wordpress.com/2009/05/21/the-allure-of-biomedical-treaments-for-autism.

211
Buttar regarding the value of TD-DMPS: Ibid.

211
Buttar warns against using other transdermal chelation therapies: Rashid A. Buttar, “Buttar Autism Treatment Protocol: Advanced Concepts in Medicine/Center for Advanced Medicine,” Center for Advanced Medicine (August 2004).

211
Buttar regarding Trans-D: Buttar,
9 Steps
, 254.

211
Older cure-alls: Anonymous,
Nostrums
, 436–53.

212
Sales of Trans-D: Buttar,
9 Steps
, 238.

212
Buttar regarding pharmaceutical companies: Rashid A. Buttar, D.O.,
Know Your Options: Sudden Cardiac Death, #1 Symptom of Heart Disease,
DVD (Coral Gables, Fla.: Dolphin Entertainment, 2007).

212
Specter on Big Placebo: “Michael Specter: The Danger of Science Denial,” YouTube, www.youtube.com/watch?v=7OMLSs8t1ng.

212
Buttar's oath: Buttar,
9 Steps
, xvii.

212
Buttar warns against medical doctors: Ibid., 10.

213
Buttar insists on unquestioning compliance: Rashid A. Buttar, D.O.,
Know Your Options: Cancer, The Untold Truth,
DVD (Coral Gables, Fla.: Dolphin Entertainment, 2007).

213
Buttar claims that doctors don't follow their own advice: Ibid.

213
Buttar and CDC conspiracy: Rashid A. Buttar, D. O.,
Know Your Options: Heavy Metal Toxicity: The Hidden Killer
, DVD (Coral Gables, Fla.: Dolphin Entertainment, 2007).

214
CDC warning about chelation therapy: “Deaths Associated with Hypocalcemia from Chelation Therapy—Texas, Pennsylvania, and Oregon,
2003–2005,”
Morbidity and Mortality Weekly Report
55 (2006): 204–7 (italics mine).

215
Buttar on how his son became autistic: Buttar,
9 Steps
, 263.

215
Buttar regarding thimerosal: Rashid A. Buttar, D. O.,
Know Your Options: Heavy Metal Toxicity
.

215
Buttar on not vaccinating his child: Ibid.

215
Studies showing that thimerosal in vaccines didn't cause autism or mercury toxicity: Institute of Medicine,
Immunization Safety Review: Thimerosal-Containing Vaccines and Neurodevelopmental Disorders
(Washington, D. C.: National Academies Press, 2001); K. M. Madsen, M. B. Lauritsen, C. B. Pedersen, et al., “Thimerosal and the Occurrence of Autism: Negative Ecological Evidence from Danish Population-Based Data,”
Pediatrics
112 (2003): 604–6; A. Hviid, M. Stellfeld, J. Wohlfahrt and M. Melbye, “Association Between Thimerosal-Containing Vaccine and Autism,”
Journal of the American Medical Association
290 (2003): 1763–66; J. Heron and J. Golding, “Thimerosal Exposure in Infants and Developmental Disorders: A Prospective Cohort Study in the United Kingdom Does Not Support a Causal Association,”
Pediatrics
114 (2004): 577–83; N. Andrews, E. Miller, A. Grant, et al., “Thimerosal Exposure in Infants and Developmental Disorders: A Retrospective Cohort Study in the United Kingdom Does Not Support a Causal Association,”
Pediatrics
114 (2004): 584–91; P. Stehr-Green, P. Tull, M. Stellfeld, et al., “Autism and Thimerosal-Containing Vaccines: Lack of Consistent Evidence for an Association,”
American Journal of Preventive Medicine
25 (2005): 101–6; E. Fombonne, R. Zakarian, A. Bennett, et al., “Pervasive Developmental Disorders in Montreal, Quebec, Canada: Prevalence and Links with Immunization,”
Pediatrics
118 (2006): 139–50; W. W. Thompson, C. Price, B. Goodson, et al., “Early Thimerosal Exposure and Neuropsychological Outcomes at 7 to 10 Years,”
New England Journal of Medicine
357 (2007): 1281–92; R. Schechter and J. Grether, “Continuing Increases in Autism Reported to California's Development Services System,”
Archives of General Psychiatry
65 (2008): 19–24; E. Fombonne, “Thimerosal Disappears but Autism Remains,”
Archives of General Psychiatry
65 (2008): 15–16.