Authors: Sarah Aronson
THIRTY-SEVEN
Dave looked very uncomfortable. “I should have told you right away.”
“Told me what?”
He told me to sit down. “Emma first joined the mission six months ago. She had just found out that her leukemia had returned after a year in remission. The prognosis was not good.”
My mind reeled. “What do you mean, not good?”
He didn't say. “After many weeks of prayer and discussion with me and some very good doctors, she decided that she didn't want to undergo any more treatments. Instead, she put her trust in God and faith.”
Now I was on overload. “What does that mean? Are you helping her die?”
“No,” Dave said. “On the contrary, I believe I'm helping her live. I'm helping her free herself from the torture of treatment. And every day, she seems more alive. More committed. She grows stronger, she looks healthier. She says she's never felt better in her life.”
There were so many things wrong with this. “You're encouraging this?” To me, it sounded more like suicide.
He grabbed me by the arm and forced me to sit down. “She thought you might see it that way. But no matter how you feel about faith, it's a viable choice. It is her choice. She decided to live the life she was given with dignity, and we have to respect that.”
This would be fine for an old person, but we were talking about Emma. She was seventeen. She had her whole life in front of her. “What about her parents? Don't tell me they gave her the green light to kill herself, too.” Then I figured it out. “Did you come here so that I could make her better? When were you going to tell me that? How long were you going to wait?”
He didn't answer my questions directly. “When I was invited to come here, of courseâthe first thing I thought of was that I wanted you to meet her. And not just because I thought you might help her. I thought you'd be good for each other. And then we got the news about Abe. And we began to wonder. And hope. I was sure that providence had brought her to you. And then more miracles happened. You started to trust me. Brian walked. You came here on your own.”
I couldn't understand how he could play games with Emma's life. “And what were you going to do when I couldn't make her better?”
He shook his head. “That was never a consideration. She believes that God has a plan. She isn't looking for guarantees.”
“And now?”
He grabbed his Bible and said nothing for a long time. “I think this is a test. Brian and his mother are God's way of testing me. If I can stay strong, she will be fine. She will get better. We just have to stay strong.”
If there were another glass bowl, I would throw it at him. He was acting like me, believing that this was about him as much as it was about her. “Dave, you have to make Emma go to a doctor.”
He went to the door and opened it. “Go home, Janine. That is not going to happen. Emma will not go back to the hospital. She wants no more painful treatments.” He told me that, now that I knew, I had to be discreet. “You can't tell anyone what you know. She's in hiding, Janine. She didn't run away from her parents just to go back into that hell.”
THIRTY-EIGHT
People said, what comes around goes around.
They didn't know what they were talking about.
Instead of taking the elevator downstairs, I went to her room. Emma was sitting in bed. I realized that in one way, I was as guilty as Dave. I saw only what I wanted to see.
Now it was so obvious.
Her arms were thin. Her knees stuck out. She was dying. It probably took every ounce of energy just to get through the day.
“I feel stupid,” we said at exactly the same time, but neither of us smiled. This wasn't funny. Not for her, not for me. I would never understand anyone being willing to die without a fight.
She stared straight ahead. “Your hair falls out. You puke all day. You can't get out of bedâeven to go to the bathroom. I'm not going to be a martyr.”
It sounded terrible. “But lots of people get better. There's a girl from my school whoâ”
“And just as many don't.” She showed me a picture of herself before chemo. She was chubby. Healthy. Smiling. “My strain of leukemia is particularlyâhow do they put itâaggressive. Best-case scenario was pretty much off the table.”
She was not going to convince me that what she was doing was the right way to go about things. “What about your parents?”
She looked sad. “I miss them, but if I go home, they will make me go back to the hospital. They located a match.”
“For what?”
“Bone marrow.”
I begged her to reconsider. I'd seen the PSAs about bone marrow transplants. They saved lives. They worked real miracles. “Don't you miss your friends? Don't you want to live?”
Her posture stiffened. “Yes, I want to live, but no, I do not miss being the spunky sick girl that people have to visit to feel less guilty about their own good luck. I don't want to risk spending the rest of my life in a bed. If I can just stay with Dave until I'm eighteenâthen I can go home. My parents won't be able to force me to do anything.”
I looked at the picture next to her bed. A smiling threesome, not that different from mine. But these parents were alive. They loved her. They wanted her to live. Her mother should not have to read a Book of Death to know how her daughter was feeling at the end of her life.
I held up my hands and let her see every line, every scar, ever disfigurement. I said, “Do you still believe I can help you? Do you want to try?”
At first, she didn't move. She didn't have to tell meâshe was scared. She wanted me to try. She still wanted to believe. She put her hands on mine, and we closed our eyes. This time, I knew what to do. I pictured her getting stronger. I asked Godâwhoever he or she or it wasâto pay attention.
I prayed. I spoke directly to God. If there were any justice at all in this world, she would get better. This girl deserved to be healthy. She was good. She helped other people. “Make her better. Let her live.” I scrunched my eyes tight. And then I listened. I waited. I wanted to hear my mother's voice. I knewâif there were any hope of this workingâthat that was what had to happen. I had to feel the way I felt when Abe began to breathe. I tried to conjure up optimism and hope.
But nothing happened.
I squeezed her hands tighter, but all I could think of was that line from the Kaddish, the prayer for the dead, the line that made me so mad.
He who makes peace in his high holy places, may he bring peace upon us, and upon all Israel; and say Amen.
I prayed desperately. “Help her. Now. Come down off your high holy place and help her. Mom, talk to me. I know you weren't perfect, but I need you. Don't abandon me again. I need one little miracle. I need to hear the words. I don't want Emma to die.”
No voice spoke. My mouth was dry like dust. When I opened my eyes, my mother was not here; Emma's eyes were not closed. She said, “You can't fix me.” I was pretty sure she'd been looking at me almost the whole time.
I grabbed her hands. “Let me try again.”
She told me to leave. “If you care about me, walk away. Live. Next time you go to a party, go for me. Next time you kiss someone, kiss him for me. You complained how people look at you? When people find out I have leukemia, they treat me the way you are looking at me right now. Like fine china or a contagious disease or a ticking clock about to stop. They think they can tell you exactly what you should do. The reason I left home isn't because I want to die. It's because I want to live. On my terms. I want to live a normal life. For once, I want to be just like everyone else.”
THIRTY-NINE
I wanted to heal her.
I wanted to touch her hands and make her better.
I didn't know what I was thinking.
I called Miriam and told her what happened. I begged her to pick me upâthere was no one else I could talk to.
We sat in the car outside the hotel. “She's dying,” I said. “How did I miss that?”
Miriam tapped the steering wheel. She fiddled with the defrost and air conditioning so that the front window wouldn't fog up. I said, “The worst part is, she's dying and she expects everyone to sit back and watch.”
“It's definitely tragic,” Miriam said, but she didn't think there was anything I could do. “It's her life. This is what she wants.” Only Emma had the right to say what she was willing and not willing to do.
That stunk.
No one should be allowed to give up like that. Because no one could know when it would end.
Miriam was pretty sure I didn't know all the facts. “If the treatments make her sick ⦠if they're really that bad ⦠if it doesn't work on her cancer ⦔
“That's a crock.” I knew what it felt like to be left behindâto have so many questionsâand I didn't wish that on her parents. I also knew what it was like to be in the hospitalâhow scary it was. All those numbers. All those decisions. The doctors weren't allowed to tell you that a treatment is 100 percent effective. They were taught to give you odds. But there was always a chance.
Always.
Miriam's phone jingled like a xylophone. I said, “She's just being stubborn. If she can get a transplant, she should take it.”
She stared at her phone. When it jingled again, I said, “You can get it, I don't care. I just want you to know I didn't mean to blow off the protest.”
The next time it rang, she picked it up. Her voice immediately sounded happier. She said yes and no a few times, then she laughed. When she hung up, she changed back to serious. She asked the million-dollar question. “If chemo is that badâif you knew you were ultimately going to die no matter what you didâshouldn't you have the right to live the way you want to?”
I wasn't sure. Maybe yes. Maybe no. Maybe I just wanted Miriam to be on my side. Maybe I wanted her to come over to my house, sit in my window seat, and worry about whether any animals were tested making her nail polish. “I think you have a responsibility to live. I don't think anyone should be willing to give up and die.” When she looked unconvinced, I said, “The only thing she can be sure of is that she'll die if she does nothing. She doesn't know what will happen if she takes the treatment.” I looked out the window. I didn't like talking ethics. I was uncomfortable talking about choosing death.
But Miriam would not let up. “I know you really care about her, but this isn't your problem. It isn't about you.”
She didn't understand. “But I can do something. I can tell her family where she is.”
“And what do you think will happen then?” Miriam asked. “You'll be the hero? She'll thank you forever? I'll forgive you? Roxanne will tell the world that you are the greatest person in the worldâthat the disappointed people can rally around you after all?”
She knew me too well.
When I started to argue, Miriam told me she was done. “Do what you want.” She drove in silence until we arrived at my house. “But if I were you, I'd talk it out with Lo. Remember: Emma is your friend. She trusted you. That has to mean something too.”
I said goodnight. It meant a lot. That was the problem.
At 11:12, I watched Roxanne interview Ted. I watched the footage I'd already seen, and I listened as Ted informed the world of everything I already knew: Brian and his mother fooled Dave and me. Brian's mom wanted to be famous. Brian hoped that he would be, too. I cringed when Ted said, “I don't know how the kid sat in that chair as long as he did.”
The second the show went to commercial; the phone began to ring. Lo said, “You don't have to get it,” but I disagreed. I needed to do something different.
I said that I never was and never would be a healer. I said that I accepted responsibility for people believing I could help them. I apologized to everyone I could think of for things I did and did not do. I was so contrite, I probably sounded pathetic.
(Or humble, as Lo would say.)
By 2:30
A.M
., Lo took out a big amber bottle and poured herself a nip. The house was quiet. I made ten official statements, all the same. Lo thought I was very brave. She made me hot chocolate.
I wondered what my mother would say.
When Lo was too tired to talk anymore, I went upstairs to my room. I put the hamsa around my neck and read the journals. My mother was passionate. She had principles. I may have hated some of them, but she did what she felt she had to do, every step of the way. She listened to her gut.
I needed to listen to my gut. I needed to do the right thing for Emma.
When the sun began to rise, I opened my eyes and dialed the number, and I wasn't surprised when she picked up on the first ring. There were a few things I wanted to say to Roxanne Wheeler, but at this hour I had to keep it brief, simple, and direct.
This was for Emma.
“She has cancer. She is hiding from her parents.”
Roxanne took down every detail. She asked a lot of questions. How old is she? What kind of cancer? Do you know what her parents do? How long has it been since she ran off?
I didn't know much.
“Just promise me,” I told her. No press. No pictures.
“What's in it for me?” Roxanne asked.
I offered myself. After Emma was reunited with her parents, I promised to sit down for an interviewâthat exclusive she wanted. I promised to tell her everything I knewâabout the bombing, about Dave, about what it was like to be the Soul Survivor, to be famous for being found.
I picked up the Book of Death. I was going to do this, because I still wanted to believe in happy endings. This story could not end in death. More than anything, I didn't want Emma's mom to look for answers in a book.
I wanted to do for her what she did for others.
Roxanne reviewed the details one more time. She thanked me for trusting her, which I found extremely funny. Emma trusted me, but I didn't expect she would understand.
It might still be an act of selfishness. Miriam might be rightâmaybe I could never redeem myself or my mother.
But Emma would live. That justified everything.