Read Knocking on Heaven's Door: The Path to a Better Way of Death Online
Authors: Katy Butler
Tags: #Non-Fiction
decades earlier in London. My husband-to-be and I knelt on the
floor of the converted bull barn as a priest named Yvonne told
us to “give up your small selves and take refuge in each other.”
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My mother was in the front row, wearing a flowing dark red silk
aoi dai
she’d sewn herself. “I take refuge in the Buddha as the
perfect teacher,” I recited as she and my father watched. “I take
refuge in the
sangha
as the perfect life.” In one of our wedding photographs, my new husband and I run smiling through the
dark carrying flowers, caught in the flash with our heads bowed,
through a hail of thrown rice to the old black family Mercedes
his parents had given us. Our hair is shiny, our skin unlined, our
faces confident. My mother is spotlighted in the darkness in the
background, and her tiny beautiful face holds the infinite sad-
ness of a woman who knows marriage and its small deaths and
quiet disappointments.
The AIDS epidemic hit, and people I loved were plunged into
a medieval world of death before which medicine was power-
less. Issan Dorsey, one of the Zen priests whom my mother
photographed at Tassajara, founded in the Castro District of
San Francisco a hospice he called Maitri, the Sanskrit word for
kindness. I’d left the
Chronicle
by then, and I interviewed him for the
New Yorker
’s “Talk of the Town” section. As he patched
his old summer meditation robe, he gave me a lesson on dying
that went right over my head. “Half of the people in this com-
munity are going to die within the next five years,” he said. “It’s
just our daily life. It’s nothing to get out of or wish wasn’t hap-
pening—it’s happening.
“More and more certainly I know I’m going to die. I know
people who are taking courses in the Tibetan Book of the Dead,
but think it’s too late for a crash course in dying. This is your
preparation for dying.” He put down the robe he was sew-
ing. “Right now. Just to live your life more completely in each
moment. The way I get ready for my death is by sewing these
things and talking to you.”
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Issan died of AIDS two years later, while I was trying to avoid
another kind of death, the death of my marriage, by studying the
Mahayana Buddhist sutras in a monastery in southern France
with the Vietnamese monk Thich Nhat Hanh. Alongside Viet-
namese war-refugee nuns who knew in their bones what the
words meant, I chanted every morning, “I am of the nature to
grow old. There is nothing I can do to escape growing old. I am
of the nature to die. There is nothing I can do to escape death.”
In the end, we chanted, we would lose everything and everyone
precious to us. “My actions are my only true belongings,” went
the last lines. “ I cannot escape the consequences of my actions.
My actions are the ground upon which I stand.”
From France I sent my mother a photograph of me smiling in
a conical straw Vietnamese hat, and a watercolor I’d painted of
a bursting orange flower, with this message:
Taking the first step
of the day, I enter the wondrous realm of reality.
She pinned them on her bulletin board and never took them down. After I came
back to America, quit my newspaper job, and separated from
my husband, she listened to me cry for hours on the phone, as
wrenchingly as any widow. For my next birthday, she bought me,
and herself, subscriptions to
Tricycle, the Buddhist Quarterly,
and later she read the essays I wrote for it.
I was touched and surprised by her interest in Buddhism
but more impressed with my own. I was the one who’d medi-
tated at dawn in a cold stone barn for months at a time, avowed
my ancient twisted karma in a black robe on the night of the
full moon, studied the great master Dogen, and been given the
dharma name “True Lotus.” I was the one who’d read the
Flower
Garland Sutra
and the
Ratnakuta Sutra
and meditated on my body falling apart and becoming a rotting corpse.
Buddhism did not make my mother an easy woman, any
more than it made me an easy woman. She struggled till the
day she died with what Twelve-Steppers call character defects,
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Buddhists call
samyojanas,
or internal knots, and she called her besetting sins. But after my father’s stroke, it would be she, not
I, who lived her Buddhism.
I rounded a ridge, and the peak of Mount Tamalpais revealed
herself, rising. I remembered the Indian devotional poet Mira-
bai, who sang, “I worship the mountain energy night and day.”
I missed my mother. I wanted the pain in my heart to leave
me. I wish I could tell you that my heart went out to her in
her suffering or that I thought about the price she was paying
for caring for my father. That I rose above myself, understood
her unremitting stress, transcended being a needy and resentful
daughter, and forgave her. I wish I could say that I remembered
the Buddha’s Second Noble Truth: that suffering is caused by
wishing that things (and people) were different or trying with
equal vehemence to stop things from changing in an evanescent
world, likened by poets to a drop of dew. But thirty years of
self-help groups and therapy and off-and-on Buddhist practice
had done only so much for me. I still sometimes reacted like a
five-year-old left in the street by a dominant and overwhelmed
young mother. I was preoccupied with my own pain.
The trail switchbacked, taking me down deeper. An hour after
noon, I stopped at a thick wooden memorial bench just above
Muir Woods, in a grove of old-growth redwoods that the log-
gers left behind. There I sat, following my breath, watching my
thoughts and feelings rise and fall, robed in silence and filtered
brown light. The natural world restored my soul. It soothed me
like a mother. I laid my burdens down before it the way I’d seen
Christians at a Taizé ceremony rest their heads upon the cross.
I thought of how my mother had suffered at the hands of
her
equally critical and perfectionist mother, Agatha, who liked to
say, “If there’s a wrong way to do something, Val, you’ll find it.”
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I thought of Agatha’s childhood as a neglected little girl, tend-
ing a mother constantly felled by migraines, or “sick headaches,”
as they were called then. I thought of the neglected child my
mother had been, with badly matched parents who didn’t speak
to each other for days at a time, a little girl so lonely that she
fantasized being found drowned like Ophelia by her parents, who
would weep over her body and finally, openly, show how much
they loved her. I thought of her as a newlywed, who saw her
accurate and naturalistic watercolors of exotic fish published in a
landmark book,
The Sea Fishes of Southern Africa,
when she still had hopes of becoming an artist—until she discovered she’d accidentally become pregnant with me. How far back did it stretch,
our lineage of maternal deprivation, artistic frustration, and sor-
row? My female ancestors were like the orphaned lab monkeys in
Harry Harlow’s experiments, raised on cold, wire monkey-moth-
ers, who grew up incapable of intuitively mothering their own.
I grew up in England after the Second World War, when
the British psychoanalyst and attachment researcher John
Bowlby, fascinated by the psychological effects on British chil-
dren who’d been separated from their families to escape the
Blitz, was studying interactions between children like me and
mothers like mine. One day, two of Bowlby’s successors, the
researchers Mary Main and Judith Solomon, watched a little
girl enter a room where her emotionally unreliable mother sat in
a chair. The little girl resolved her fear and ambivalent longing
by walking toward her mother backward. I had done the same.
Away from her, I missed her. Next to her, I wanted to flee.
A few weeks after I came down from the mountain, I got an
envelope from my mother containing some newspaper clippings
she thought might interest me, and a note. She acknowledged
that I’d come east without seeing them. I called her. Neither of
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us said I’m sorry, or I love you, or I forgive you. It was a standoff:
we just went on. But in the years that followed, she would never
again shout at me or criticize how I ate. She would be more
tolerant. She would repeatedly tell me how much my father had
loved me, and how proud of me he had been. She would, at
my request, check with me before making a major medical or
financial decision. She even wrote me checks so that I could
hire a bookkeeper and free up my weekends to compensate for
the time I spent helping her. She sent me a calligraphy reading,
“Strive for imperfection.”
My father had never stopped writing me, and he soon sent
another letter, this one containing an oblique reference to the
fact that he would someday die and leave me. “All of our affec-
tion goes toward you so you must cherish it,” he wrote. “Think
of it often because it will sustain you.” He signed it, “your Death
Father.”
My mother went back on Remeron, bought herself a self-
help book on patience, and returned to her old comfort, Bud-
dhist meditation. She reread a book I’d given her years earlier:
Full Catastrophe Living,
by Jon Kabat-Zinn. In it, Zinn described a Western form of mindfulness meditation stripped of bells,
robes, and Asian religiosity. He’d introduced it to people suf-
fering from chronic pain at a hospital in gritty Worcester, Mas-
sachusetts, and many had found some relief. It was a paradox:
facing and accepting the present moment, however painful,
could make things feel less painful. My brother Jonathan called
it accepting life on life’s terms.
My mother rose alone each morning at 5:30. For the next
hour and three quarters, she was free. She slipped a Kabat-
Zinn disk called
Body Scan
into the CD player I’d given her, lay down on an old, padded, cotton, sleeping bag by the living room
window, and followed his voice, mentally sweeping her body
from top to toe, releasing her diaphragm, noting each sensation,
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breath, mood, and thought without judgment. When the CD
was finished, she did an hour’s worth of yoga. Then she went
upstairs, got my father up, and began yet another day—a day
whose stresses increased with each stage of my father’s decline.
She wrote in her journal that she found herself more patient,
responding rather than reacting. She felt she could face what-
ever came her way.
For the Christmas of 2005, a little more than a year after our
blowup, I came home. It was four years since the stroke, and
my father was now eighty-two: quieter, more easily fatigued and
confused, and more unsteady on his feet. He was still exercising
at the pool, but Toni often drove him there. The second upstairs
bathroom had been renovated since my last visit: my mother
had brought in a construction crew and replaced the tub with a
walk-in handicapped shower.
I took my father with me one evening to steal a frond of dry
bamboo from the Japanese garden behind Wesleyan’s Asian Arts
Center—the kind of petty larceny that my mother and I loved
to indulge in, and that had once sent him into paroxysms of
embarrassment. We brought it home in the darkness, and my
father hung up his own coat: my mother had finally moved the
hook down to where he could reach it. We strung the bamboo
stalk with shiny Christmas globes and tiny lights.
My mother roasted a duck for Christmas dinner, and we
invited over one of my parents’ friends, a dying architect named
T.J., who’d designed the vestibule added onto my parents’ house.
His wife had died a month earlier of breast cancer at home
under hospice care. T.J. had congestive heart failure, and the
African woman caring for him drove his station wagon through
our backyard, across a snowy slope in the darkness, to get him
as close as possible to my parents’ sliding glass back door. My
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mother and I stood on either side of him as a light snow fell, and
we helped him in.
Even though Brian and I usually gave holiday dinners for his
sons and his old friends, Christmas had not meant much to me
for a long time. When I was in my twenties and broke, my par-
ents had never offered to pay my flight east. When I’d worked for